Imihlahlandlela Yokunika Amandla Iziguli ezine-COPD, ibuyekezwe ngochwepheshe, iziguli nabanakekeli

Isingeniso esidingweni soHlelo “olunobekezela”(1):

Imiphakathi eminingi yokunakekelwa kwezempilo, iyasibona isidingo sokunika amandla iziguli nemindeni yazo ukuthi zisebenzise izinqubo ezinzima kakhulu zokuqinisekisa ukuthi izincomo zokunakekelwa kwezempilo zaziswa ngobufakazi obukhona kakhulu.

Ngakho-ke, kunesidingo sokusetshenziswa kahle kwezinsizakusebenza nokusebenzisana kwamazwe omhlaba ukuqondisa ukuthuthukiswa, ukuqaliswa, kanye nokuzivumelanisa nezimo okuholela kokuqukethwe okuqondakala kangcono, okusho ukuthi “okunobungane nesineke”.

Izinhloso:

Unale njongo engqondweni, i-GAAPP (Global Allergy & Airways Patient Platform) ngokubambisana ne-APEPOC (Spanish National COPD Patient Association) kanye nokubuyekezwa kwesayensi kwe AMAKHIBI(2) bakhile Imihlahlandlela engu-6 kusekelwe ngobufakazi besayensi futhi izindinganiso zomhlaba jikelele zokuphathwa kweCOPD(3) njengethuluzi elivumela iziguli ze-COPD, imindeni yazo, kanye nabanakekeli ukuthi benze izinqumo ezihamba phambili ngesifo sabo.

Indlela yokusebenza:

Le mihlahlandlela ingumphumela we Indlela “Yokubandakanya Ukubamba iqhaza”(4) kanye "nesiphakamiso senani lesiguli", esigxile ekuzilawuleni kwesifo uqobo nasekuvikeleni ukuqhubeka kwaso ukuthola izinga lempilo elingcono nokuphila isikhathi eside.

Izinkinga ezibalulekile okufanele zibhekwane nazo:

  1. I-COPD ayitholakali kahle futhi neziguli noma (ukunakekelwa okuyisisekelo) odokotela abazi ngakho
  2. The umthelela wokwelashwa isiguli ngokulawulwa kanye nokuqhubekela phambili kwesifo ayanele
  3. Ukuntuleka kokuxhumana phakathi kweziguli nodokotela
  4. Ukuntuleka kokusebenza kahle, eqhubekayo, futhi ehlukahlukene ukuqapha
  5. Ukuxilongwa nokwelashwa kokukhula kwamandla akusebenzi futhi ukuzinakekela akukhuthazwa.

Izihloko zomhlahlandlela:

  1. Prevention
  2. Sifo
  3. Maintenance
  4. Ukuphathwa kwe-COPD ezinzile
  5. Ukuphathwa kwama-flare
  6. Izifo ezihlangene kanye COVID-19
Ngabe ufuna le mihlahlandlela ihunyushelwe olimini lwakho lwezwe? Xhumana nathi ku- info@gaapp.org

Ithimba lesazi:

 Ithimba lezinhlobonhlobo zochwepheshe beziguli, odokotela nabaphenyi, imikhakha eminingana:

  • Umxhumanisi Iqembu: Gundula Kobmiller (GAAPP), Tonya Winders (Mengameli we-GAAPP), Nicole Hass (Okhulumela Umeluleki Wezobuchwepheshe we-APEPOC), uDkt. Ady Angelica Castro (Umcwaningi Wezokwelapha CIBERES ISCIII).
  • Iqembu Lokusebenza: U-Ady Angelica Castro (Umcwaningi Wezokwelapha i-CIBERES ISCIII), uDkt Isidoro Rivera (Udokotela Wokunakekelwa Kwamabanga Aphansi), uNicole Hass (Okhulumela Umxhumanisi kanye Nomeluleki Wezobuchwepheshe we-APEPOC), uDkt. .
  • Ukusekelwa kwe-Methodological: Carlos Bezós (Isikhungo Sokuhlangenwe Nesiguli, IEXP).
  • Ukwesekwa kwezokuphatha nokuhumusha: (ISpanishi, isiRashiya ne-Ukraine): uLara Puente (APEPOC), uViktoria Rozhko (APEPOC).
  • Okunye ukuhumusha: I-GAAPP (Global Allergy & Airways Patient Platform).
  • Isiguli Iqembu: UJuan Traver, uConsuelo Díaz de Maroto, u-Antonia Coalla, u-Elena Diego.
  • Iqembu lokusekela elengeziwe (iziguli): Asunción Fenoll, Fernando Uceta, José Julio Torres, Justo Herraíz, Luís María Barbado, Maria Isabel Martín, María Martín, Pedro Cabrera.
  • Iqembu lamalungu omndeni wesiguli nabanakekeli: U-Ángeles Sánchez, u-Ivan Pérez, uJosé David Fernández, uJulián Durand, uMatilde Aparicio.

Le mihlahlandlela yenzelwe iziguli ze-COPD kanye nabanakekeli, ngenxa yomsebenzi wokubambisana we:

I-GAAPP Global Allergy & Platform Yesiguli Yesiguli
I-APEPOC

Ngokubuyekezwa komtholampilo kwe:

AMAKHIBI

Ngenxa yokwesekwa okukhulu kwe

Ilogo ye-Astrazeneca

References:

  1. I-Institute of Medicine (IOM) ichaza imihlahlandlela yokwenziwa kwemitholampilo ngokuthi “izitatimende ezibandakanya izincomo, ezihlose ukwandisa ukunakekelwa kweziguli, ezinikezwa ngokubuyekezwa okuhlelekile kobufakazi kanye nokuhlolwa kwezinzuzo nobungozi bezinye izindlela zokunakekelwa”. Isifo esingapheliyo se-pulmonary pulmonary disease (COPD) siveza ukungafani ngokwempilo okukhulu, ngakho-ke ukwelashwa kwaso kufanele kube ngezomuntu ngamunye kuye ngezinga lobungozi kanye ne-phenotype.
  2. I-CIBERES (I-CIBER Yezifo Zokuphefumula) iyinethiwekhi yocwaningo ehlukahlukene ehlukahlukene enenhloso enkulu yokulwa nezifo zokuphefumula ngokukhuthaza ukugqama ocwaningweni nasekuyidluliseleni ngokushesha nangokuphepha ekwenziweni kwemitholampilo. Kuya ngeCarlos III Health Institute, Ministry of Science and Innovation yaseSpain
  3. Imihlahlandlela ye-GOLD 2021 https://pubmed.ncbi.nlm.nih.gov/33146552/ Imihlahlandlela yeGesEPOC 2021 https://pubmed.ncbi.nlm.nih.gov/32980163/
  4. URodríguez-Villasante T, Montañés M MJ. La investigación social participativa, construyendo ciudadanía .. El Viejo Topo. Ama-CIMS abomvu (iRed de Colectivos y Movimientos Sociales); 2000. 175p ISBN-10: 849522416X. https://www.participatorymethods.org/glossary/participatory-action-research